Of Mice & Men’s Austin Carlile opens up about Marfan syndrome to create awareness for rare disorder
Of Mice & Men's Austin Carlile battles Marfan syndrome—a rare connective disorder. In a Q&A on his Twitter, the frontman has opened up about that battle like never before, explaining exactly why his band has had to cancel tours, the pain he endures daily and what he has learned. This is all in an effort to create awareness around the rare disorder.
Read it all below, and visit the Marfan Foundation to find out more.
Is there a cure?
How long has he had Marfan syndrome?
What has he learned?
About the pain he endures daily:
It’s called “Pain” because that is what it’s about: It talks about my personal journey of the last few years and how I relate that to the current state of the world that we live in now. People face pain every day, whether it be physical, mental, spiritual, emotional, metaphysically, metaphorically—everything. It’s something we wanted to touch on because it’s been such a big part of my life and pain in general has been something I have been living and breathing for the past 12, 15 years. The tour we have coming up with Slipknot and Marilyn Manson gave us an opportunity to get our foot in that door of music that still makes me want to scream my face off. And we have songs [on the new album] that do that. There are also songs that may not have any screaming because there doesn’t need to be. If I’m screaming on the record, it’s because I’m pissed about what I’m screaming about. It’s really important for us to paint that picture for the listener.
Why Of Mice & Men tours have been canceled:
Earlier this week, it was announced Of Mice & Men would not be able to go out on their upcoming tour with A Day To Remember due to Carlile's ongoing recovery. This news came after Carlile's month-long hospital stay, which began when the band were forced to cancel a European tour, so the singer could focus on his health.
Signs of Marfan syndrome:
How many procedures has he had?
Why the lack of awareness?
How did he know he had it?
How does he help others and give positivity when dealing with so much?
Follow the Marfan Foundation on Twitter here.